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Road Map to Holland: How I Found My Way Through My Son's First Two Years With Down Syndrome | 
 enlarge | Author: Jennifer Graf Groneberg
Publisher: NAL Trade
Category: Book
List Price: $14.00
Buy New: $0.73
You Save: $13.27 (95%)
Rating:  19 reviews
Sales Rank: 324625
Media: Paperback
Pages: 304
Number Of Items: 1
Shipping Weight (lbs): 0.6
Dimensions (in): 8.1 x 5.5 x 0.8
ISBN: 0451222954
Dewey Decimal Number: 618.92858842092
EAN: 9780451222954
ASIN: 0451222954
Publication Date: April 1, 2008
Availability: Usually ships in 1-2 business days
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Product Description
An exceptional memoir that provides emotional insight and practical advice.
It's like planning a trip to Italy, only to get off the plane and discover you're actually in Holland. You need a new road map, and fast...
When Jennifer Groneberg and her husband learned they'd be having twin boys, their main concern was whether they'd need an addition on their house. Then, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome.
Here, Jennifer shares the story of what followed. She dealt with doctors-some who helped, and some who were disrespectful or even dangerous. She saw some relationships in her life grow stronger, while severing ties with people who proved unsupportive. And she continues to struggle to find balance in the hardships and joys of raising a child with special needs. This book is a resource, a companion for parents, and above all, a story of the love between a mother and her son-as she learns that Avery is exactly the child she never knew she wanted.
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| Customer Reviews: Read 14 more reviews...
Another must read! December 29, 2008
Jessica Heeran (Wallingford, CT)
1 out of 1 found this review helpful
JGG gives such a wonderful, detailed description of her journey to "Holland" when she finds out that one of her twins has Down syndrome. As a mother of a child who has Down syndrome, I LOVED this book! I highly suggest it to any parent or a family member of a child with DS.
Join in the Journey of a Special Mother December 7, 2008
Leticia Velasquez (Shetucket Valley, CT)
1 out of 1 found this review helpful
Those of us who give birth to children with Down syndrome have been likened to travelers to Italy who find that their plane unexpectedly lands in Holland. The title "Roadmap to Holland" is a reference to that famous essay by Emily Perl Kingsley, who worked for decades writing for Sesame Street and whose son Jason has Down syndrome.
She has for generations provided this invaluable wisdom for new parents of children with Down syndrome. In "Roadmap to Holland" we meet Jennifer, a new and compassionate companion on our journey raising a child who is both very different, and yet surprisingly similar to our other children.
Jennifer and her husband Tom had the perfect life; both writers, they lived on a peninsula on a lake in Montana; they worked in their home office down the hill from their home, surrounded by peace and tranquility of nature. Their life was enlivened by the joy of a young son, Carter. Just what inspired them to test fate by conceiving again? This question kept returning to Jennifer's mind as the difficulties in her journey to Holland began to reveal themselves. Twin boys, Bennett and Avery and were born seven weeks premature with the daunting possibility of lifelong repercussions. Just when Jennifer thought the news couldn't get worse, she was informed that Avery, her little blue-eyed boy with a full head of blond hair, had Trisomy 21, an extra 21st chromosome. Jennifer's first reaction, like so many, was an urge to flee, leaving all the fears behind. She, however being the valiant woman she is, stayed the course, and, for months commuted to the hospital, pumping her milk round the clock, holding her babies by turns, caring for her older son, longing for a full night's sleep, until, finally, her little boys came home, one by one to the little house by the lake.
Jennifer's story is a vivid, day by day journal of some of the most devoted mothering in modern literature, tempered by her honest descriptions of her personal growth in acceptance of Avery's diagnosis. Her vivid descriptions of each scene, draws us into her life's journey so deeply that we are reluctant to see the book end. "Roadmap" evoked so many of my own fond and painful memories as the mother of a daughter with Trisomy 21, that I feel as if I could easily spend a quiet winter afternoon at the little house by the lake chatting with her by the fireplace, sipping tea as our children play at our feet.
Still searching for the spiritual underpinnings of life, Jennifer is not afraid to admit that she has not found all of life's answers, yet she is powerfully articulate describing the beauty of what she has found; that life with three little boys, one of whom has an extra chromosome, is a blessing she never would have anticipated. She has been enriched by her experience in ways which, until this book came out, many other mothers could not appreciate: she cites the tragic statistic that 90% of expectant mothers whose unborn child is diagnosed with Down syndrome choose to end it's life. Books like "Roadmap to Holland" provide support to mothers facing the daunting prospect of raising a special needs child; they know that they are not alone. They can pick up this volume; and enter into Jennifer's world of challenges, tears, and triumphs, where, through sleep-hooded eyes; a grateful mother can still see the sun shine.
I recommend this book for mothers who are facing challenges, and seek companionship on their journey. Jennifer has an extraordinarily detailed description of the therapies available for our children, coupled with a complete appendix with resources for parents of children with Down syndrome. I hope that "Roadmap to Holland" joins "Gifts" on the bookshelves of obstetricians and genetic counselors who want to give their patients a realistic yet inspiring idea of what it's really like to raise a child with Trisomy 21 in today's world.
Great Book For Everyone, Not Just Down Syndrome People July 31, 2008
carolinaskeptic (Columbia, SC United States)
0 out of 1 found this review helpful
Nobody in my family has Down syndrome, but I still found this book to be well written. It is not a how to book, it is simply the experiences of a mother who was surprised at birth with premies, including one premie with Down Syndrome. It is not a happy happy uplifting I'm so grateful for all my blessings book but it is an honest story of the work, the shock, the complicated set of feelings, the processing of said feeling, and the reactions of friends and family. I was left with a determination to keep up with this family and especially darling Avery.
How I wish that the young people I work with could read this book and realize that a child is not a cute toy to dress up, but a human being that may have profound needs, or at any rate special needs, and that they need to build a firmer support system and gain maturity before throwing that B/C away.
PS If you're reading this, former neighbor who shunned the family as if Down is as easy to catch as chicken pox, your cruelty shocks me.
A must-read for all new parents facing a DS diagnosis June 25, 2008
J. Smith (Petersburg, AK)
2 out of 2 found this review helpful
This book took my breath away with its factual, emotional, and honest capturing of the journey through the birth, diagnosis, and early growth of a child with Down syndrome. Groneberg clearly displays the confusion, guilt, exhaustion, fear, and (later) unparalleled joy that the news, 'Your baby has Down syndrome' brings. I hope that all new parents of babies with DS will read this book and find validation, encouragement, and most of all hope as they walk through the initial maze of doctors' offices, therapy appointments and stacks of insurance papers. Groneberg rightly emphasizes that the delights and treasures brought to their family by their son with DS makes it all worth it.
I think this book should be the first thing a parent receives from the hospital, along with the diagnosis of Down syndrome. If it were, so many new parents would be spared some of the misconceptions, confusion, and fear that often accompanies the initial diagnosis. If you are a doctor, family member, or therapist in contact with new parents of babies with DS, please consider giving them this book. It will do them a world of good.
A joyous story about what really matters...or ought to. June 19, 2008
Karen L. Carter (Denver)
4 out of 4 found this review helpful
In ROAD MAP TO HOLLAND Jennifer Graf Groneberg reveals a lifetime of lessons learned in a very short time-span. Her message of hope resonates with the joy of her ultimate discovery that one of the greatest gifts she can give her children is to simply teach them how to love. Read this book, read Jennifer's blog, and join in a celebration of a unique family with a mom-writer at the helm who's gracious and generous enough to invite us all along on her ongoing journey of discovery.
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